Welcome to THE GERMAN
GLUT1 TRANSPORTER DEFICIENCY SUPPORT Association!
We are the "Förderverein Glukose-Transporter (GLUT1) Defekt e.V." – the German Glut1 Transporter Deficiency Support Association.
We want to draw attention to the GLUT1 Transporter (GLUT1) deficiency and educate interested parties – patients, families, friends and the medical profession – about it.
The purpose and task of the association is to promote public healthcare and research in this particular field.
On this website, we shall introduce you to the tasks and objectives of the association and inform you in detail about the GLUT1 deficiency and its currently only proven therapy - the ketogenic diet.
For those affected by the GLUT1 deficiency and for doctors, dieticians and other interested parties, the website provides a portal offering greater knowledge and understanding about this little-known, rare disease and - in the case of concern - support for coping with it.
Please support the Förderverein Glukosetransporter (GLUT1) Defekt e.V.!
- support research and teaching on the GLUT1 deficiency and its treatment options
- clarify about the GLUT1 deficiency and treatment options – in particular, the ketogenic diet
- promote the flow of information between affected families, doctors, clinics and research institutions
- work together with other equivalent associations, foundations and institutions at home and abroad
- continuously collect data about the disease and help to present it
- support the concept development for competent, professional care for GLUT1 patients in adulthood
- support families with children with GLUT1 deficiency
The Ketogenic diet
the foundation "Förderverein Glukosetransporter(GLUT1)-Defekt e.V."
registered at the District Court of Bremen on December 17, 2002
recognized as a charitable organisation by the tax authorities of the Federal State of Bremen on February 06, 2003
we are the german glut1ds group,
concerned parents and supporters
The foundation of this charity has created the basis for a forum providing parents of children and adolescents with ketogenic diet.
Our charity aims to increase the public awareness of this disease by providing comprehensive information on this treatable epileptic encephalopathy. We also want to encourage physicians to take the GLUT1 deficiency syndrome into consideration as one of the possible causes when intractable seizures occur.
Diagnostic criteria for the GLUT1 deficiency syndrome are well established. By adhering to the ketogenic diet, patients with this disease are generally free of seizures and do not have to take additional anticonvulsant medication. This improves not only the chances of a healthy development but also the general well-being of young patients.
With your support, too, we hope to help children and adolescents affected by the GLUT1 deficiency syndrome and enable them to lead a “normal” life.