(GLUT1) DEFEKT E.V.
We are the Förderverein Glukosetransporter-GLUT1-Defekt.
We want to draw attention to the metabolic disease glucose transporter (GLUT1) defect and educate about it.
Purpose and task of the association is the promotion of the public health care and the promotion of research.
We introduce you to the tasks and objectives of the association and inform you in detail about the GLUT1 defect and its currently only proven therapy - the ketogenic diet.
For those affected by the GLUT1 defect and for doctors, dieticians and interested citizens, the homepage offers a forum to understand this little-known disease and - in the case of concern - dealing with it.
Support the Förderverein Glukosetransporter (GLUT1) defect e. V.
- support research and teaching on the GLUT1 defect and its treatment options
- clarify about the Glut1 defect and treatment options. In particular, the ketogenic diet
-promote the flow of information between affected families, doctors, clinics and research institutions.
- work together with other equivalent associations, associations, foundations and institutions at home and abroad
- continuously collect data about the disease and prepare it
- support the concept development for the professionally competent care GLUT1 defect affected in the adulthood
- support families with children with GLUT1 defects
The Ketogenic diet
the foundation "Förderverein Glukosetransporter(GLUT1)-Defekt e.V."
registered at the District Court of Bremen on December 17, 2002
recognized as a charitable organisation by the tax authorities of the Federal State of Bremen on February 06, 2003
we are the german glut1ds group,
concerned parents and supporters
The foundation of this charity has created the basis for a forum providing parents of children and adolescents with ketogenic diet.
Our charity aims to increase the public awareness of this disease by providing comprehensive information on this treatable epileptic encephalopathy. We also want to encourage physicians to take the GLUT1 deficiency syndrome into consideration as one of the possible causes when intractable seizures occur.
Diagnostic criteria for the GLUT1 deficiency syndrome are well established. By adhering to the ketogenic diet, patients with this disease are generally free of seizures and do not have to take additional anticonvulsant medication. This improves not only the chances of a healthy development but also the general well-being of young patients.
With your support, too, we hope to help children and adolescents affected by the GLUT1 deficiency syndrome and enable them to lead a “normal” life.